Tuesday, 18 August 2015

Endometriosis: When did it all start?

Christmas 2009 is when my life changed. I had always suffered extremely heavy and painful periods. But to me that was normal. I didn't realise then that was a symptom. I was able to manage it. Whether it was wearing two pads, scouring chemists or supermarkets for period pain relief, heat pads, painkillers, holisitc bracelets, taking days off school or spending days in bed. That was my normal.

But Christmas 2009 is when more symptoms started coming. Nothing I could put my finger on exactly at the time. I just I knew I didn't feel right. Especially my emotional health. I was so down. With hindsight it must of been changes of my hormone levels as hormones play such a big part in Endometriosis.

Looking back, I now know that was the start of the flare. February 2010, I started having stabbing pains in my stomach. I remember the 1st ever time it happened. I was doing normal things. I was actually walking across my landing to get to my bedroom. The pains shot across through my stomach so badly I ended up crippled over holding onto the staircase. It frightened the life out of me.

The next time it was Valentines day. I went to a concert with my friends to London. In the car on the way home I started to get those same shooting and stabbing pains. Trying to ignore and conceal them then was so hard. That's the point I knew something definitely wasn't right.

Fast forward to June of that year. This was the first time to experience the 'Endo belly'. The swollen stomach. I had gone away to London for the weekend with my family to celebrate my birthday. I had a lovely blue day dress that fitted me well. I have pictures of me in it with my stomach flat. Once home, pains had flared yet again. My mother took me to the doctors on a Wednesday morning. My stomach was 'normal'. By the Wednesday afternoon it had instantly swollen. With that same dress on, I looked 5 months pregnant. I remember asking my mother if my stomach looked swollen and both our reactions when we realised how big it went. That is a memory that sticks.

When was the first time you realised something wasn't right? That it wasn't normal to be in this pain? Can you remember your first big pain/flare up?

I would love for you to share. Thanks in advance.



  1. For me I was in denial a really long time, I also wasn't in touch with my body. I had horrible pain down my lowerback and all through my right leg weeks out of the month, horrible constipation, often couldn't pass gas, and my periods were beyond unmanageable. I know it was a least like this for 2 years before I put the pieces together in my mind and recognized that something was wrong. It still took me another 9 months to get proper treatment and surgery.

  2. Before I found out I had endometriosis, I had been to several doctors by the time I was 18 and I would suggest that I had endometriosis because I had heavy and irregular bleeding and terrible pain but they said I was too young and that it was all in my head. I finally got diagnosed when my mother took me to a specialist doctor in India last year. I finally got medicine that would help me cope with it. Sometimes it's very hard but knowing that someone out there is going through it and putting a voice to it. It's very encouraging!

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