What do you tell them? How much do you tell them? When do you bring it up?
A million questions have been overloading my mind lately as I start a new chapter in my life. The last few weeks have been a bit of a whirlwind for me. A good one! But, fast moving, exciting and terrifying all at once. The scariest part of it all is how endometriosis will impact everything. Right now, it is behaving. But we all know how quickly that changes.
I don't want my life revolving around Endo. It has taken over way too much of it already! Now, I have started enjoying my life again, I'm terrified it will be snatched away to pain once again.
I have shared The Spoon Theory with my new boyfriend, who was extremely understanding about it. Which actually made me feel so much at ease. I have explained a few of the symptoms. He knows I get 'bad days' and that i'll need rest and hot water bottles. As with anyone though, until they see you in pain and having a bad day, endo is pretty much indescribable. Yes we can list off all the symptoms and the technical terms, but to know how it really affects us has to be seen. This is an experience I do not want to happen any time soon! But at the back of my mind, I know it eventually will. You can never escape Endo for too long.
I guess the only answer is to take one day at a time. With honesty and hope. We never know how we will be from one day to the next, so planning how/when/what to say is pretty irrelevant, I suppose? Endo is so unpredictable, so I will go with the flow.