Skip to main content

Endosisters: People like us..

"People like us, we've gotta stick together..." 

Endometriosis binds us all together. So who better to talk to when we feel like we're sinking into a world full of pain and despair? The answer... Endosisters! There is nothing better than talking to someone who knows exactly how you are feeling, understands what type of pains you are having, or has experienced the next treatment you have to 'try'. Having people who understand that daily life with Endo, can sometimes, get a little too much, is a massive benefit. Endosisters know that you may be overcome with emotions one day and struggling to get through the pain, but ready to fight the world the next day! But they will always be there. Good times and bad. Helping each other through. That's why we stick together.

The words to this song I think are so fitting & gave me a massive boost when I first heard it!


Lyrics

"We come into this world unknown

But know that we are not alone
They try and knock us down
But change is coming, it's our time now

Hey… everybody loses it,

Everybody wants to throw it all away sometimes
And hey… yeah I know what you're going through
Don't let it get the best of you, 
you'll make it out alive

Oh People like us, we've gotta stick together

Keep your head up, nothing lasts forever
Here's to the damned, to the lost and forgotten
It's hard to get high when you're living on the bottom

Oh whoa oh oh whoa oh

We are all misfits living in a world on fire
Oh whoa oh oh whoa oh
Sing it for the people like us, the people like us

Hey, this is not a funeral

It's a revolution, after all your tears have turned to rage
Just wait, everything will be okay
Even when you're feeling like it's going down in flames..."


#MyEndoDiary

Comments

  1. Hi,

    I was looking for a way to email you but I couldn't find it. I am a 33 yr old female, diagnosed with severe endometriosis and post-op surgery to remove it which came with its own setbacks and experiences. I just started my own blog and I am amazed at all the women suffering with this disease. I browsed your website and some of your comments matched how I was feeling exactly. I would be interested in talking to you about your experience. If you go to my blog, you can email me and we can perhaps share common stories/ experiences. (I don't really do twitter). I think a community where we can find others like us is such a great idea... I should have looked sooner!
    Anyway, here is my blog: http://livingwendometriosis.blogspot.com/
    On the right-hand side you should be able to email me if you are interested. I hope to hear from you. Also if any other women read this post and would be interested in sharing experiences/pain/frustration/stories, etc. I am totally interested in that. I am new to blogging/blogger and still finding my way around but PLEASE feel free to email me from the link above and I will definitely respond to anyone who is going through this crappy disease with me.
    Stay strong and thank you for letting me see others are out there!

    ReplyDelete
    Replies
    1. Thank you for taking the time to read my blog and comment. I would love to chat further with you and I have sent you a message on your 'contact' area of your blog! Look forward to chatting with you!

      Delete

Post a Comment

Popular posts from this blog

Endometriosis: Post op

Ok, so I thought I should update you all after my operation on Tuesday.  I have a lot of mixed emotions after the laparoscopy though and I promise to fill you all in soon. I'm sure many of you have felt the same way I'm feeling now so I will post in the near future about all the details. Sharing information is the best way to know we're not alone in this. But for the moment, I'm just getting my head around things and concentrating on recovery. UPDATED: Endometriosis was found in my ovaries as expected and removed. It was also found on my bowel, but it was left untreated. #MyEndoDiary ♡

A Day In The Life Of An Endo Girl - 16/04/13

Seeing as I've named my Blog 'My Endo Diary' I've decided to start this project, 'A Day In The Life Of An Endo Girl' to portray just a snippet of a day with Endometriosis. Women with Endo are not lazy. Some, such as myself suffer daily pain. Chronic pain. Sometimes mild, sometimes exhausting, sometimes severe. Small things hurt massively. What some people take for granted doing, can take all of my energy. Even down to doing the dishes or making food. Endo is unpredictable. Tomorrow may be a better day. It may be worse. If I look or sound OK one day it doesn't mean I'm better. I'm either hiding the pain from you (I've become quite good at this), having an 'up and down day' (explained below) or on the rare chance having a good day. Every day with Endo for me, is different. However at the moment, they all contain some sort of pain. So here's my first entry. 16/04/13                   5:45am Woken up by Endo pains, stabs in my hips

Endometriosis: 3rd Time Lucky?

August 25th. This will be the date of my next operation. My third. I have waited 12 months to get this date. Then, out of the blue, I receive a letter from the hospital. With only 12 days notice. In a way, that's good. Less time to stress. But for me, I'll stress no matter what. I'll just cram a year of waiting into 12 days of worry. I'm now down to 7 days. This time next week... Some people may think that knowing what will happen and how the day pans out etc, will be a benefit. A comfort perhaps. For me, it's the complete opposite. I know how emotional I will get. I know the feelings of panic, anxiousness and nervousness will build up. I know at certain points they'll peak and I'll break down. Just before I'm due to go down to theatre I'm guaranteed to start crying. The fear takes over and there's nothing I can do at that point but just trust the doctors and nurses. But that's normal I guess. Third time around, it will not be any