Endometriosis. Endo. Adhesions. Laparoscopy. Endosisters. Words that I had never even heard of before my own diagnosis. Now they are in my everyday vocabulary. Why does the awareness of this chronic illness have to be nearly as invisible as endo itself? I hate what we have to go through on a daily basis. Isn't it enough to cope with pains that no one else can see without having to fight doctors to believe us that they are there? Surely, we shouldn't have to convince people the pain is not all in our heads! From being doubled over in pain to missing work, school, family time and special events. To then being put through the mill with all the medications that are thrown at us. Hormones upon hormones. Painkillers and more painkillers. Poking and prodding. Surgery after surgery. Add to that endless amounts of hospital appointments and sleepless nights in between.
Is it realistic to think in this day and age that we should be expecting more?
More awareness? Especially with those in the medical field.
More reliable diagnosis? Not just leaving our only option of a reliable diagnosis via surgery.
More research? One's that are actually acted on! Research that will improve our daily living, not just to be published and float off into cyberspace.
More treatments? Treatments that will provide a longer lasting effect. Less side effects. Don't we have to put up with enough already?!
I sincerely hope one day soon that these expectations of mine will become a reality. Where people won't respond with "Endo what?" when we tell them what we have, but instead will have some knowledge on it.
Keep blogging, keep tweeting, keep spreading information on all social network sites. Keep researching, keep fundraising. We need to start shouting about Endometriosis from the rooftops.
Click here to view my Endometriosis FAQ that I compiled myself, to help with awareness.. I've added my own personal experience to help!
Is it realistic to think in this day and age that we should be expecting more?
More awareness? Especially with those in the medical field.
More reliable diagnosis? Not just leaving our only option of a reliable diagnosis via surgery.
More research? One's that are actually acted on! Research that will improve our daily living, not just to be published and float off into cyberspace.
More treatments? Treatments that will provide a longer lasting effect. Less side effects. Don't we have to put up with enough already?!
I sincerely hope one day soon that these expectations of mine will become a reality. Where people won't respond with "Endo what?" when we tell them what we have, but instead will have some knowledge on it.
Keep blogging, keep tweeting, keep spreading information on all social network sites. Keep researching, keep fundraising. We need to start shouting about Endometriosis from the rooftops.
Click here to view my Endometriosis FAQ that I compiled myself, to help with awareness.. I've added my own personal experience to help!
#MyEndoDiary
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