1. A sick note to cover me for my time off from work this week.
2. Higher dose evorel/hormone patch to help me cope with the rise in side effects from the new medication.
3. More buscopan cramp tablets as the last few weeks i've been in agony and they only supplied me with a weeks worth last time..
As soon as I walked into the Dr's office, the first words she uttered to me was "You have 10 minutes." After having to wait an extra 30 minutes as she was running late with the last patient I wasn't too impressed but just let it pass. I explained what had been happening the last few weeks, pains, cramps and side effects. Answer - stop the Norethisterone. Simple yes? No. I then had to explain to her what these tablets actually were and what they were being used for, as prostap wasn't working alone it needed this to co-inside with it. If I stopped taking it I would be bleeding all day, every day, very heavy like before. I was then advised that irregular/heavy periods were not a symptom of endo and not very common at all. Ok.. left that go also. The next piece of advice she decided to give me was "I need to put up with some pain"...Oh My Gosh... At this point I wanted to slap her. I 'put up' with pain everyday. I have 'put up' with it for years! I always take my mother into every appointment with me, I have been dismissed so many times she always comes in now to make sure they listen to me. I looked at my mothers face when the Dr said this and knew instantly this wasn't just me being 'hormonal' and taking it the wrong way. My mother quickly informed the Dr that I go for too long without taking pain relief, because I hate doing it, and on a day to day basis she ends up shouting at me to take something because by that time I'm doubled over in pain, usually crying. I thought at this point the Dr would provide me with the prescription she had wrote and I could leave. Wrong. She then went on to ask me "Am I sure I actually have endometriosis and it's not just a bowel problem??"
So Dr, if it's not endo then I had a laparoscopy for the sake of it? I'm having prostap injections every month, being put into an early menopause, wearing hormone patches and taking pain relief tablets nearly every day at just twenty three just for the sake of it? I nearly blew. I normally have the patience of a saint. I'm quite a laid back person, don't take things too seriously if I don't have to, I don't argue back with people. But this time I really felt like blowing. My health I take more seriously than anything else. Why should I just have to 'put up' with things? Now I'm at the point I'm really upset. I've cried a little and cant believe I've let a doctor who knows nothing about endo make me feel this bad. I even started to think maybe I shouldn't have asked for those things? I should have just stuck it out...luckily my sense kicked back in pretty much straight away and I remembered what an endosister said to me yesterday:
"I don't care what HE says, what SHE says, or what THEY say. All I know is what I say AND I know my body best."
Wise words. How true this mantra is, I just didn't think I'd be using it so soon. I'm totally and utterly fed up. Why does it have to be such a battle? Constantly! Why can't doctors actually read up on endometriosis and actually speak to their patients. Learn first hand from us what its actually like, not just read from textbooks. What can I do to change this? I'm running out of steam, energy, patience and idea's.. But if I stop shouting, stop searching then I'd be in a worse situation. No one writes this on an endo fact sheet. Its about time doctors got real..!!